News, Links and Commentary
Sunday, May 16, 2004
Criswick-Schepens Syndrome Search and FEVR
Recently someone searched my site for a condition known as Criswick-Schepens Syndrome (a form of familial exudative vitreoretinopathy - FEVR).
The person entered an incorrect spelling of the name. I hope that by including the correct spelling here, I might be able to help this person's search.
Criswick-Schepens Syndrome is rare and only today did I find the Familial Exudative Vitreoretinopathy Eye Disease Home Page. The site includes many links to research articles and information on how to cope with the condition. I've now added a link to it on my International RD Organisations Page.
Who Named It? also gives a short and scientific description of Criswick-Schepens Syndrome and research articles on the syndrome can be found using PubMed. For more search results using PubMed, enter "familial exudative vitreoretinopathy" rather than "Criswick-Schepens Syndrome."
Many people enter mispelled terms into the search box on my site. Maybe this is because specialists do not give patients written information about their condition. Or maybe people are searching for information on behalf of friends or family and have only heard the terms spoken. If you're ever unsure about spellings when searching the Internet, it might be useful to use Google for suggestions. Spelling suggestions will appear below the search box and just above the search results. This method isn't perfect but it might give you a bit more to go on.
The person entered an incorrect spelling of the name. I hope that by including the correct spelling here, I might be able to help this person's search.
Criswick-Schepens Syndrome is rare and only today did I find the Familial Exudative Vitreoretinopathy Eye Disease Home Page. The site includes many links to research articles and information on how to cope with the condition. I've now added a link to it on my International RD Organisations Page.
Who Named It? also gives a short and scientific description of Criswick-Schepens Syndrome and research articles on the syndrome can be found using PubMed. For more search results using PubMed, enter "familial exudative vitreoretinopathy" rather than "Criswick-Schepens Syndrome."
Many people enter mispelled terms into the search box on my site. Maybe this is because specialists do not give patients written information about their condition. Or maybe people are searching for information on behalf of friends or family and have only heard the terms spoken. If you're ever unsure about spellings when searching the Internet, it might be useful to use Google for suggestions. Spelling suggestions will appear below the search box and just above the search results. This method isn't perfect but it might give you a bit more to go on.
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