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News, Links and Commentary

Monday, July 17, 2006

Acetazolamide and Edema 

The last RetGen post (Internet Business for Brothers With RP) referred to a Cambridge Evening News article about Andrew Hall, who has RP and has recently opened his own online business. The story mentioned that Mr Hall experienced improved vision for his wedding by taking an unnamed prescribed drug. The Guardian gives more information:


Mr Hall, who was diagnosed with Retinitis Pigmentosa during his teens, was prescribed the drug Acetazolamide, which dried up the excess water in his eyes and enabled him to see.

His mother, Patricia Hall, said it was a dream come true for her son.

"He was able to see a vision of Carolyn in her gown," she said. "It was not as clear as you or I might see, but he said she looked absolutely beautiful and the memory will stay with him."

Mrs Hall said her son could not take the drug continuously because of the severe side-effects it produces.

"It can't be taken for long, because it affects the nerves, gives you pins and needles and tics in your muscles," she said.

'Blind groom can see for wedding day', 16 July 2006.

Acetazolamide, which may be known to some readers as Diamox, is used to treat edema rather than retinitis pigmentosa itself. For more information, visit MedlinePlus Drug Information: Acetazolamide.

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